Event Brief
May 8, 2026 at 10:05 PM ET
Huntington’s patients seek rare disease tag & registry
By The BriefBrief
Families and researchers are pushing for Huntington’s disease to be recognized as a rare disease in India to create a registry.
WHO: Families and researchers
WHAT: Advocacy to recognize Huntington’s disease as a rare disease and establish a patient registry in India
WHEN: May 8, 2026 at 7:22 PM ET
WHERE: India
WHY: The registry is needed to quantify patient numbers and improve care.
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