Event Brief
B.C. family races to save boy with metachromatic leukodystrophy
Filed: Jul 09, 2026 at 11:05 PM ET
Summary: A B.C. family says their little boy’s metachromatic leukodystrophy has progressed and they are racing to save him.
WHO: One B.C. family
WHAT: The family says their little boy has metachromatic leukodystrophy and they are racing to save him as his condition worsens.
WHEN: Jul 09, 2026 at 10:16 PM ET
WHERE: British Columbia, Canada
WHY: The family noticed their boy was stumbling and could no longer use the stairs after being diagnosed with metachromatic leukodystrophy.
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